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Frequently Asked Questions

The Clinic FAQ's | Cleft FAQ's | Surgery FAQ's

 
The Clinic FAQ's
 

  1. What conditions do you treat at the Johns Hopkins Cleft & Craniofacial Center?
  2. What happens at the Clinic at the Johns Hopkins Cleft & Craniofacial Center?
  3. How often does a child typically come to the Clinic?
  4. What is the philosophy the Clinic takes toward treatment?
  5. How does the team at Johns Hopkins Cleft & Craniofacial Center work with parents?
  6. When do you start seeing parents about treatment for their children?
  7. How long are children seen at the Clinic for cleft lip and palate treatment?
  8. What is the advantage of the interdisciplinary approach at the Clinic at Johns Hopkins Cleft & Craniofacial Center?
  9. What sets the Johns Hopkins Cleft & Craniofacial Clinic apart?
  10. Where do the majority of Johns Hopkins Cleft & Craniofacial Center patients come from?
  11. Does the Cleft Center refer patients to other Clinics or specialists?
  12. How does one make an appointment at the Clinic?
  13. Does the Clinic accept insurance?
  14. What should parents or guardians bring with them to the Clinic?
  15. Is it ok to bring other children to the Clinic?
  16. Where do people park to attend the Clinic?
  1. What conditions do you treat at the Johns Hopkins Cleft & Craniofacial Center?
    We see all types of children with oral and facial differences, including children with cleft lip and palate, facial paralysis, and other types of developmental and craniofacial differences including: Craniosynostosis, Hemifacial Microsomia, Apert Syndrome, Crouzon Syndrome, Moebius Syndrome, Pierre-Robin Sequence, Saethre-Chotzen Syndrome, and Treacher-Collins Syndrome.
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  2. What happens at the Clinic at the Johns Hopkins Cleft & Craniofacial Center?
    Our specialists work together as a team at the Clinic on Monday afternoons two times a month. Our team includes two plastic surgeons, speech/language pathologists, dentists, orthodontists, geneticists, ear, nose and throat (ENT) doctors, and a nurse coordinator, all of whom specialize in cleft lip and palate. The children usually come in early in the afternoon and they see appropriate members of the team. At the end of the day, the team gets together to discuss each child individually and come up with a treatment plan for each child. That information is shared with the family, the patient's primary care physician and other professionals whom the parents indicate. The patient's primary-care physician is an important part of the team.
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  3. How often does a child typically come to the Clinic?
    During the first year of treatment, probably two or three times. After the child's cleft lip and palate are repaired, the child will typically come once a year, unless there are issues that require additional visits to the Clinic.
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  4. What is the philosophy the Clinic takes toward treatment?
    We treat every child individually because no two children are alike in their development. In our treatment plan, we aim to accommodate the physical changes that will happen as the child grows during the developmental years. We consider all of these factors — physical and emotional — when developing each child's individual treatment plan. We also work closely with the patient's primary-care physician and dentist.
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  5. How does the team at Johns Hopkins Cleft & Craniofacial Center work with parents?
    Educating parents about cleft and craniofacial differences is an important part of our mission at Hopkins. We reassure them these conditions are very treatable. We work with the parents to coordinate the very best treatment for their child. The Clinic is designed to make it easy for families to see a variety of doctors and specialists.
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  6. When do you start seeing parents about treatment for their children?
    Thanks to ultrasound technology, it's often possible to diagnose cleft lip and cleft palate differences in the womb. We encourage the parents to come in and see us as soon as a diagnosis is made so we can talk about treatment for their baby. Our doctors will examine the baby shortly after birth. We like to meet with the parents as soon as possible after the child is born to discuss a schedule for surgery and the child and the family's individual needs.
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  7. How long are children seen at the Clinic for cleft lip and palate treatment?
    Most children are seen all the way through their teen years.
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  8. What is the advantage of the interdisciplinary approach at the Clinic at Johns Hopkins Cleft & Craniofacial Center?
    An interdisciplinary team means that the children we treat benefit from expertise that spans numerous disciplines in cleft lip and palate care. With our surgeons, orthodontists, language pathologists, dentists, geneticists, psychologists, and nurses, we can provide comprehensive, coordinated care that addresses all of the aspects of craniofacial treatment.
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  9. What sets the Johns Hopkins Cleft & Craniofacial Clinic apart?
    Our interdisciplinary approach draws on the expertise of more than 15 pediatric specialists and we have extensive experience in cleft lip and palate care. Johns Hopkins has provided excellent care, leadership, and scholarship for many decades. We aim to provide excellence in education for our colleagues and for the public via our website and publications. We work on community outreach programs. Through our various programs and activities, we focus on awareness for families and physicians. We are committed to research and analysis, so that we can continue to learn about craniofacial differences and track the success of our patient treatment. Through NIH funding, we have made strides in research to find the gene for cleft lip and cleft palate. Integrating clinical excellence with research excellence and educational excellence are why Johns Hopkins can provide the best patient care.
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  10. Where do the majority of Johns Hopkins Cleft & Craniofacial Center patients come from?
    The majority of patients live in the region, but the Clinic also treats patients from around the country and overseas.
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  11. Does the Cleft Center refer patients to other Clinics or specialists?
    Yes, we see patients whose craniofacial conditions are treated at other Clinics and we refer patients to the appropriate specialists.
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  12. How does one make an appointment at the Clinic?
    Call Dr. Richard Redett's office at 410 955 9475.
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  13. Does the Clinic accept insurance?
    The Clinic accepts most insurance plans. We discuss insurance issues when making an appointment.
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  14. What should parents or guardians bring with them to the Clinic?
    If your insurance requires a referral, be sure to bring a copy to the Clinic or have it faxed to 410 955 7060. We recommend you bring any recent tests or reports about the patient such as hearing tests, CT scans, X-rays or MRI’s. You should plan on being at the Clinic for about three hours so it’s a good idea to bring snacks and activities for the child. You will need cash to pay for the parking garage.
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  15. Is it ok to bring other children to the Clinic?
    Other children are welcome at the Clinic but on the whole, if possible, we recommend attending the Clinic with just the patient. This way parents and guardians can really focus on the important information from the Clinic team.
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  16. Where do people park to attend the Clinic?
    The Clinic is at the Johns Hopkins Outpatient Center on 601 North Caroline Street. Parking for the Outpatient Center is on McElderry Street, off North Caroline Street. Be sure to bring your parking ticket from your car because you need to pay before you return to the car.
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